YANA - YOU ARE NOT ALONE NOW
PROSTATE CANCER SUPPORT SITE
SURVIVOR STORIES :
DISCUSSION FORUM :
WIVES & PARTNERS :
TELL YOUR STORY :
UPDATE YOUR STORY :
YANA HOME PAGE :
DON'T PANIC :
GOOD NEWS! :
TREATMENT CHOICES :
ABOUT US :
#2 - GO TO INDEX FOR EARLIER LETTERS
YANA - YOU ARE
NOT ALONE NOW
CANCER SUPPORT SITE
men need enlightening, not frightening
Response to first E-Letter: Thanks and Congratulations to the movers.
initial response to the idea of sending out an E-Letter was excellent - thank
you all for that vote of confidence!! There are more than 400 subscribers from
the 1,000+ invitations I sent out and knowing that some of these would have been
caught in Spam filters, that’s a pretty good result. Interestingly enough
it seems from the reports I have that many people have passed on copies of their
E-Letters, which is fine as far as I am concerned. The more people we can reach,
the better and new subscribers are welcome. Just click on this link Subscribe to this E-Letter I have simplified subscription
process a little, but Bravenet (who supply the service) comply with standards
aimed at reducing Spam. If anyone who subscribes does not click o n the confirmation
e-mail generated, they will not be added to the Mailing List.
of the men who were good enough to share their stories on YANA have migrated across to the myProstate Site
and have shared their story there. Thank you to all you initial movers –
that’s about 10 per cent of the current subscribers. I’m hoping that
level of participation can double while I’m away on my next trip –
see below – and I’d really be happy to see the first 100 up by the
time I get back.
I cannot emphasise the importance of telling your story
on the new site. I have had many mails since I announced the non-continuance of
updating the YANA Experience pages. All say how useful it was to be able to read
other men's experiences in the early dark days of diagnosis. It doesn’t
take much effort to really help those who come behind us – to show them
The links below to the page in the YANA site will give some help in dealing with
what seems initially to be a fairly complex site. Please overcome your genetic
reluctance to read instructions and get on with sharing your tale - especially
why you chose the path you did and how that has turned out for you. Go to it:-)
do you get your information?
I signed up for the E-letter service, my main intention was to find a way of telling
as many people of the changes I was making to the YANA site and to tell them about
the myProstate site.
It was only after I had started that process that
it occurred to me that this would be a useful way of trading relevant information
to other prostate cancer men. Good thought, but what was relevant
in this context? After all the men who subscribe cover a very wide range of therapy
choices, stages and outcomes.
My first thought was to mention The "New" Prostate Cancer
Infolink mainly because I personally have found it so useful. There are so
many media articles published, so many links posted in Internet Forums and it
is often difficult to evaluate them. The articles themselves are often simply
the media releases put out by interested parties and even Abstracts of good studies
are difficult to interpret at times without reading the full paper. Mike Scott,
who is the Sitemaster of the Infolink does a great job in summarising and analysing
the information. I have found that very helpful indeed. If you use the RSS link
on the site you can get a message every time Mike posts new items.
E-Letters I will mention other sites that might be useful and I will be reviewing
and re-writing the Resources page in YANA. It would be a help for me to focus on
these issues if you could e-mail me (just hit Reply) and give me the URL of any
site you have found useful, with a brief note as to why this was so.
in accord with our plan to make the most of life while we have it – or before
our ageing bodies protest too much – we are off on a cruise at the end of
this month, so you are unlikely to hear from me again before the end of October
or early November.
Our travel plans for this trip are to fly to London via Kuala Lumpur
(that’s about a 27 hour trip – Australia is a long way
from anywhere!). We board the good ship Marco Polo on September 29 and cruise the Baltic
and Mediterranean for the best part of a month.
I’m really looking forward to the break and the voyage. Nothing to beat
a cruise for me.
By chance we will be in Stockholm on October 7 and will be
able to celebrate our 44th Anniversary with our good friends Lars and Gerd. That
was an unexpected bonus.