YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

HOMEPAGE LINKS : EXPERIENCES : DISCUSSION FORUM : TROOP C : ABOUT US : JOIN US : UPDATE YOUR STORY : MAIL US

Acknowledgment and thanks are due to Eric Taylor, Australian Mentor for YANA, who created this and the other Charts.

TREATMENT EXPERIENCES

When this site was set up, there was a belief that there is tremendous value in reading of other people's experiences with prostate cancer and also recognition that it might be helpful you find someone to 'talk' to; someone who had dealt with the same issues and problems.

Most of the men who have told their stories have volunteered to act as Mentors and have provided their e-mail addresses. They invite you to mail them for any further information you might want. They may not always be able to help you directly, but may well know where to direct you.

The accounts on the site are based on information received from our contributors and they may not be completely accurate.We hope they may provide you with an insight into how others have dealt with the issues that you now face. The stories and charts provided are for your information only, and show a brief summary of what others have done. They should not be used for making your own treatment decision. Please be aware that there is much more to the decision making process, as you will see if you go to Treatment Choices.

If you would like to join those who have shared their experiences, please go to JoinUs , if you are a returning visitor and you would like to update your story, please go to UpDate.

This tag shows stories that have been added or updated in the current month or previous month.

Indicates stories that may be of particular interest.

You will see when you go to the contributors' stories that there are the following flags:

BRONZE

Men diagnosed less than 5 years ago ago have a bronze bar.

SILVER

Men whose diagnosis was between six and nine years ago have a silver bar.

GOLD

Men diagnosed more than 10 years ago ago have a gold bar with a star for each year beyond 10.

PLATINUM

The long term men - survivors of 15 years and more have a platinum bar .

Some members of the gay community have asked to be identified by this symbol.

This tagshows the men who will help answer your questions.

 

 

Most people are looking for information about one specific type of treatment, so the stories are initially grouped and indexed by:

TREATMENT but are also indexed by:

PSA :

AGE AT DIAGNOSIS :

GLEASON SCORE and

YEAR OF DIAGNOSIS

It is also possible to see some of the stories indexed by country of residence. In the case of the USA, some entries are indexed by State of residence. In time all will show State of residence. The link is PLACE NAME TABLE

TREATMENT

The stories of men newly diagnosed men are here

NEWLY DIAGNOSED/UNDECIDED

These are the links to the stories by treatment:

ACTIVE SURVEILLANCE - often referred to as WATCHFUL WAITING :

(ADT) ANDROGEN DEPRIVATION THERAPY- often referred to as HORMONE THERAPY

CHEMOTHERAPY: There are no men who have had Chemotherapy as a primary treatment

CRYOTHERAPY:

HIFU :

LAPARASCOPIC SURGERY, including Robotic Surgery often referred to as Da Vinci:

NORMAL (OPEN) SURGERY

RADIATION: BRACHYTHERAPY :

RADIATION: (EBRT) EXTERNAL BEAM RADIATION , including Prostascint® and CyberKnife®

RADIATION: PROTON BEAM

THIS CHART LISTS MEN WHO HAVE BEEN DIAGNOSED RECENTLY OR WHO ARE UNDECIDED ON THEIR CHOICE OF TREATMENT

Click on the man's name to read his personal story

 Details at Diagnosis
Primary
Treatment
Further treatment, if any, with current PSA
Name
Date
Age
PSA
GS
Stage
PSA
Treatment
Date
NEWLY DIAGNOSED/UNDECIDED
Feb-09
77
8.2
6
T1c
Undecided
-
-
Feb-09
Oct-08
66
4.7
-
-
Undecided
-
-
Nov-08
Apr-09
52
4.8
7
T1c
Undecided
-
-
May-09
Jan-09
46
5.8
6
T1c
Undecided
-
-
Feb-09
Feb-09
75
4.8
8
T1c
Undecided
-
-
Feb-09
Dec-08
73
10.5
9
T1c
Undecided
-
-
Jan-09
Apr-09
50
2.5
7
T2b
Undiagnosed
-
-
May-09
Jan-09
65
4.9
7
T1c
Undecided
-
-
May-09
Mar-09
67
4.4
7
T1c
Undecided
-
-
May-09
Jun-09
57
4.2
6
T1c
Undecided
-
-
Jun-09
Nov-08
72
42.0
8
T1c
ADT/EBRT
-
-
Jan-09
Dec-08
63
7.0
6
T1c
Undecided
-
-
Feb-09
Apr-09
71
5.9
6
T1c
Undecided
-
-
May-09
Sep-08
75
5.6
7
T1c
Undecided
-
-
May-09

THIS CHART IS SORTED BY CHOICE OF INITIAL TREATMENT: ADJUVANT AND ADDITIONAL THERAPIES ARE SHOWN IN THE UPDATE COLUMN

Click on the man's name to read his personal story and his treatment choice

 Details at Diagnosis
Primary
Treatment
Further treatment, if any, with current PSA
Name
Date
Age
PSA
GS
Stage
PSA
Treatment
Date
ACTIVE SURVEILLANCE - WATCHFUL WAITING
Aug-08
63
6.83
6
T1c
Active Surveillance
5.3
-
Feb-09
Apr-04
61
8.2
6
T1c
Active Surveillance
<0.01
Surgery
Jul-07
May-04
65
5.7
6
T1c
Active Surveillance
3.7
Cancer Free
Aug-08
Dec-07
56
5.24
6
T1c
Active Surveillance
3.99
Cryotherapy
Feb-09
Oct-05
49
2.1
6
T1c
Active Surveillance
0.6
AS
May-09
Aug-08
61
10.0
7
T1c
Active Surveillance
12.0
-
Mar-09
Feb-03
58
1.5
6
T2a
Watch & Wait
5.0
AS
May-08
Mar-03
60
4.5
6
T1c
Watch & Wait
8.6
Supplements
Jan-09
Mar-08
84
12.0
6
T1c
Active Surveillance
10.8
Watch Wait
May-08
Jun-08
73
4.1
7
T1b
Active Surveillance
0.4
Cancer Free
Apr-09
Nov-08
56
3.3
6
T1c
Active Surveillance
2.5
Diet/Exercise
May-09
May-03
47
4.59
6
T1c
Active Surveillance
6.0
AS
Feb-09
Jul-06
67
12.8
6
T1c
Active Surveillance
5.2
Cancer Free
Apr-09
Oct-02
52
6.7
5
T1c
Active Surveillance
13.4
AS
Aug-08
Mar-04
64
6.0
7
T1c
Watch & Wait
1.20
Brachy/EBRT
May-09
Aug-08
67
9.77
7
T1c
Active Surveillance
5.37
-
Mar-09
Apr-06
54
4.4
6
T1c
Active Surveillance
4.8
AS
Mar-08
Dec-06
55
5.8
6
T1c
Watch Wait
2.6
Proton Beam
May-09
Aug-07
62
3.0
6
T1c
Active Surveillance
2.8
Surgery
Oct-08
Apr-06
66
6
6
T1c
Watch & Wait
6.0
Watch & Wait
Aug-08
Jun-00
72
5.6
6
T1c
Watch & Wait
Undetec
ADT & IMRT
May-09
Nov-08
67
< 4.0
7
T1a
Active Surveillance
0.97
ActiveSurveillance
May-09
Jun-08
57
9.1
6
T2b
Active Surveillance
7.5
-
Feb-09
Jun-02
59
2.2
7
?
Watch Wait
166.0
Experimental
Jan-09
Jan-98
68
5.5
5
T1c
Watch Wait
20.0
Prostatsol
Jun-09
Aug-96
54
7.2
7
T2b
Watch & Wait
1.20
Intermittent ADT
Mar-09
Oct-03
62
6.1
6
T1c
Watch & Wait/Prostasol
4.2
Brachytherapy
Jan-09
Oct-06
52
4.3
6
T1c
Active Surveillance
4.3
AS
Aug-08
May-08
58
7.7
6
T1c
Active Surveillance
6.7
Diet & Supplements
Mar-09
Jul-07
52
4.5
-
-
Active Surveillance
6.6
Diet & Lifestyle
Nov-08
Nov-95
48
60.0
7
T1c
Watch/Wait
Passed on - RIP
Sep-07
Jan-94
58
20.0
5
T2
Active Surveillance
Rising
Change Lifestyle
May-09
Jan-09
61
10.5
6
T1c
Active Surveillance
6.6
Herbs and diet
Apr-09
Jun-07
50
3.9
7
T1c
Active Surveillance
2.0
Diet/Exercise
Dec-08
Dec-08
61
1.54
6
T2a
Active Surveillance
1.6
-
Jun-09
Oct-00
64
7.3
?
?
Watch Wait
5.0
Watch & Wait
Aug-08
Feb-06
58
4.4
6
T1c
Watch Wait
0.06
Surgery
Oct-08
Nov-02
60
5.0
6
T1c
Watch & Wait
<0.1
EBRT
Feb-09
May-05
61
1.4
6
T2b
Watch & Wait
3.2
Watch & Wait
Jan-09
Nov-08
57
4.7
6
T1c
Active Surveillance
6.3
Cancer Free
May-09
Aug-05
51
6.5
6
T1c
Watch & Wait
7.0
Alternative
Jan-09
Jan-98
76
11.0
6
T1c
Watch & Wait
Passed on - RIP
Jul-00
Nov-05
54
0.50
6
T1a
Active Surveillance
0.60
Active Surveillance
May-09
Apr-05
66
2.14
6
T1c
Watch & Wait
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