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PROSTATE CANCER SUPPORT SITE

 

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Alex Covell and Carol live in Macau. He was 64 when he was diagnosed on 30 May 2007. His initial PSA was 9.2 ng/ml, his Gleason Score was 6 (3+3) and he would have been clinically staged T1c. His choice of treatment was Robotic laparoscopy. Here is his story:

I am an American living in Macau. Absent any particular known health problems (other than a slight increase in instances of constipation), I decided to undergo a thorough physical exam + colonoscopy at Bumrungrad Hospital in Bangkok. While the outcome was generally satisfactory, my likely first-ever PSA result came back at 6.1 ng/ml. At this point I should say that my father (still living at 90), had a history of BPH and had undergone a TURP in 1990 to improve flow. For my part, I had heard for at least 20 years (and maybe 30) that I had an oversized prostate; but nothing further.

My first advice from the Bumrungrad urologist was to take PSA readings every 6 weeks in Macau and see what the trend was. Over the next 12 weeks, the PSA went to 6.8 ng/ml and then 7.09 ng/ml; at which point it was suggested I undergo a biopsy. The biopsy--taken in nearby Hong Kong at six sample points under intravenous sedation--came back negative on all six samples. The Hong Kong urologist however gave me the advice that "just because we didn't find it doesn't mean you don't have it". That is the first unnerving revelation in this process; although the end diagnosis was "BPH", the only alternative biopsy outcomes are "positive" and "inconclusive". The other discouraging consequence of this first biopsy was infection resulting in a high fever and basically a full week lost out of work; something which probably caused me to not want to undergo it again unless there was a really good reason.

In the aftermath of this experience, the Bumrungrad urologist recommended that I go on a six-month PSA test frequency from that point forward. This was however modified to 3 month frequency when the readings started to look erratic. The PSA results over the next 2 years went like this (although "Free" PSA numbers were also taken earlier, he said only Total PSA would be needed thereafter):

July 2005 - 5.2 (Macau)
December 2005 - 7.89 (Macau)
March 2006 - 8.0 (taken at Bumrungrad)
June 2006 - 5.5 (Macau)
September 2006 - 7.3 (Bumrungrad)
January 2007 - 8.22 (Macau)
April 2007 - 11.1 (Macau)

It was this last result that was particularly alarming and caused me to schedule another biopsy. This was performed at Bumrungrad in Bangkok on 30 May 2007. A total of 8 samples were taken, 5 of which coming back positive for adenocarcinoma; all but one of the positive samples showing 5% or less tumor presence and one about 10% and all with Gleason scores of 6(3+3). As results were positive on both sides of the prostate, but the Gleason scores are not too high, I'm unclear whether I am to be classified as T1c or T2c. (As on this occasion I was given antibiotics, namely Cipro, for 3 weeks following biopsy, I experienced no fever) Full body CT scan and bone scan were done on 3 and 4 June, respectively; coming back with no sign of metastases or other major issues.

Urologist placed all the options (radical surgery, laparoscopy, radiation, radium pellet implantation, "watch and wait") with survival rates as possible in my case; but suggested delaying 4 to 6 weeks after biopsy to do any of the surgical or radiation options.
After getting multiple opinions from others, I have decided to go with robotics assisted laparoscopy with Dr. John Munoz in my home state of New Hampshire. Surgery is scheduled for 17 July. I'll keep you posted.

 

UPDATED

August 2007

 

 

While my return to normalcy is still in progress, I decided it was perhaps time to update my situation as it is now three weeks after LR surgery.

As there were only a few business days available between my return date to the U.S. from Macau in advance of the surgery date of 17 July, I blitzed through the first meeting/pre-surgical consultation with Dr. Munoz, pre-screening tests (basically only EKG, chest X-ray) and Kegel exercise instruction all on 16 July in Manchester, NH. The simplicity of these preparations was enabled by the good detail from the CT and bone scans and biopsy results taken at Bangkok's Bumrungrad Hospital in early June. The robotics-assisted surgery itself took place at Manchester's Catholic Medical Center at 3 PM on the 17th with me under general anesthesia, and reportedly took a little over three hours. Although I allegedly awoke in the recovery room, my first hazy memory of returning to consciousness was as I was being transferred into the bed in my assigned hospital room. My first impressions were some localized pain coming from the five 1 inch (or less) long incisions in my abdomen whenever my stomach muscles were called to action; and of a nurse trying to teach me how to use a device you breathe into to apparently assure lung capacity recovery (I have to admit to forgetting those initial instructions and not using this item very much). Otherwise, I was aware of some devices that were strapped onto my surgical stocking-clad legs that were squeezing and relaxing on a recurring cycle; apparently to avoid the formation of blood clots. At around midnight that same night, a nurse directed me to start walking around the corridors as she carried my catheter bag; an experience that was at once painful and embarrassing.

While the alleged "best case" scenario would be that I would leave the hospital the next day to convalesce at home, this was not going to happen for me. After doing a fairly good job of consuming the liquid-only breakfast of the following morning, I became aware of a growing inability to pass anything out of the south end of my digestive system, including gas; this despite ingesting a stool softener capsule on a 12-hour cycle. In the afternoon of the 18th, I also ran a slight fever (100.4 F) which abated quickly after taking a few Tylenol. I continued to take periodic walking laps around the corridors throughout the 18th, but didn't eat much of the liquid-only lunch or dinner due to absence of appetite. I didn't sleep much during the night of the 18th into the 19th, and by mid-morning on the 19th the pain in my lower abdomen was approaching an intolerable level and no gas was releasing in any direction. To confirm that I wasn't experiencing an "ileus", I was wheeled to radiology for an abdominal x-ray. Suffice it to say that there was no tract structural cause for the problem found, and the problem "resolved itself" on the way back to my bed.

With no other issues keeping me there, I was released from the hospital - with catheter remaining in place - on 20 July. Best case scenario would indicate that the catheter could be removed on 24 July, or one week after surgery; but it would on be on the third visit back to the urology clinic - on 31 July - that the bag's blood content would be considered low enough to assure avoidance of formation of new clots in the urethra. At the time of this writing - one week after removal - the blood content appears to have cleared totally and, while early yet and the stream is somewhat weak, there are no problems yet with incontinence.

The other good news is that diagnostics that could only be enabled by the surgery itself (e.g., lymph node condition, analysis of seminal vesicles tissue, confirmation of Gleason score from samples of the removed organ) all confirmed the biopsy indications and showed no spread of the cancer beyond the prostate itself. No further treatment was accordingly prescribed, pending further PSA results. More will follow later.

 

UPDATED

March 2008

 

 

Now eight months out from surgery, I thought it time to update my situation. I returned to Macau five weeks after surgery in the U.S.; continuing to wear incontinence pads a few weeks beyond that point - and at night only - after one minor "oops" occurred the first night I tried going "cold turkey" without them. Other than that one exception, incontinence has virtually not been an issue; but I am "generally" continuing to do the Kegel exercises (although not always consistently) and will keep doing so per LR surgeon Dr. Munoz' advice for one year, post-surgery.

At this writing, I have now had three PSA tests at one month, four months and seven months intervals after surgery (the quarterly test frequency to continue for two more tests, and then change to semi-annual frequency for the following few years, absent any unusual indications); with posted results of 0.04, 0.014 and 0.013, respectively. Based on my reading of the results posted by other YANANOW Mentors, going to the third decimal place must be something unique to only a few testers (in my case, the last two readings were taken at Bumrungrad Hospital in Bangkok). With my Bumrungrad-based urologist (Dr. Choosin Jirachitsumpun) advising me that any reading that starts with "0.0" being considered "very good", I am not going to worry much about this.

Finally now understanding why many are loath to use their real names in posting their experiences, what I can say about the other "I" word is that it remains a work in progress. I was placed on a regimen of taking the "blue pill" once every other day by my LR surgeon to encourage blood flow; an approach that has since been ratified by Dr. Choosin. While other mentors are indicating different experiences, Dr. Munoz said that despite what appeared to be a successful nerve-sparing surgery, to expect it to take about a year before knowing what one's long-term capabilities will be in this area.


Alex's e-mail address is: ynotmacao@aim.com