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Allen Gentry and Jackie live in Texas, USA. He was 53 when he was diagnosed in June 1992. His initial PSA was 34.5 ng/ml, his Gleason Score was 6 and although he doesn't give his staging it seems it was T1c. His choice of treatment was surgery and here is his story:



I began getting an annual physical in the late 1980's and was in excellent physical condition in 1992, though I had begun to put on weight, even tho' I played racquetball regularly and hadn't changed my dietary habits. All previous DRE's including the 1992 exam had revealed a normal prostate gland. For the first time my internist ordered a PSA. I will never forget the day he called with the results. I was in my office with an important customer and I took the call assuming he was calling with the normal results. My memory of the rest of the customer meeting is kind of a blur.

He referred me to Don Johnson, a urologist, associated with the Dallas Presbyterian Hospital. Johnson performed a biopsy and the lab results revealed that three of the six samples were malignant with a Gleason grade of 3+3. A follow up bone scan was negative. He recommended radical surgery and stated all other treatments were less sure to provide the intended response. I was busy as hell trying to run a company in a very competitive market and really didn't want to spend time researching alternatives. I agreed to the surgery and it was scheduled for eary August.

The surgery was performed at Presbyterian. There was no cancer detected in the lymph nodes and the surgery was completed successfully. Post Op lab results revealed that the tumor filled the entire left prostate with some extension into the right prostate, and was approximately 3.5 cm. Gleason score was 4+3. The left margin showed carcinoma but the seminal vesicles were clear as was the bladder neck.

Johnson's recommended post op treatment was 6 weeks of 5 day a week beam radiation to begin in December. That treatment was completed in January and results of my next PSA were < .1

Incontinence was a slight problem for a couple of weeks after the catheter was removed, but I've not had a problem since. Impotence has been a different matter. The pump and injections were somewhat effective for a couple of years but by 1996 nothing seemed to work. I declined to pursue implant surgery and have been effectively impotent since 1997.

My quarterly, semi-annual and annual PSA tests were all <.1 until 2001 when it measured 0.10. Growth has been gradual until this month when it changed from the August 2006 measurement of 0.56 to 1.02 ng/ml. I am scheduled for a Prostascint scan for next week.

I've purposely left out a lot of side effects of the treatment and would be happy to discuss them with anyone who is interested.

LATER

On Monday, February 26 I reported to the Texas Cancer Center in San Antonio for a Prostascint scan and CAT scan. These tests revealed cancer in the prostate bed. My oncologist, Brad Prestidge, recommended either Intensity Modulated Radiation Therapy (IMRT) or Androgen Deprivation Therapy (ADT). I told him that back in the early 90's when I had my intial radiation therapy doctors told me that if there was recurrance, radiation would not be an option. Brad indicated that with the new technology and the time duration since my last treatment IMRT was a viable opton. Wanting to avoid the side effects of ADT, I've opted for IMRT. I'll be going in next week for a simulation run with a CAT scan then seven to ten weeks of five day a week therapy. He tells me the side effects will be similar to my original radiation treatment, which were primarily bowel related. I can handle that.

Will keep you posted.

 

UPDATED
June 2007

 

On May 7th 2007 I completed 37 IMRT treatments to the Prostate Bed. The side effects were almost nil. Certainly, nothing compared to the original EBRT treatments in 1992.

I am going back for my first post treatment PSA test in July. I've been warned that the results may be up, down or unchanged at this early stage, but my oncologist wants to begin monitoring it early.

 

Allen's e-mail address is: algentry@aol.com

 

 

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