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Bill Elliot and Phyllis live in Arizona, United States. Billwas 63 when he was diagnosed on 20 June 2004. His initial PSA was 4.6 and his Gleason Score was 3+3=6. He was staged as T2c. His choice of treatment was laparascopic surgery. Here is his story:


I am a dentist and once diagnosed I went to do my own research on the net. My wife is a medical surgical nurse of 40 years and warned me radical prostate surgery is not easy. After reading all the options I opted for laprascopic removal. I was referred to a doctor in southern Florida with a lot of experience. He does laprascopic but does not use the robot.


I had my surgery Aug 24, 2004. I had no pain. I was in the hospital one night. My wife, the nurse, painlessly removed the catheter when we got home on the 8th day. I was pretty wet for the first 6 weeks, but managed to go to Japan to teach a course in 5 days total round trip. Saw a lot of Japnanese bathrooms.

Now at 6 months I still need one pad a day, 98% dry at night. Since I am very active at the dental chair, (I am a gum and implant surgeon) I am sure this is a contributing factor in my incontinence.


I have not yet had an erection though the nerves were spared. I have tried Viagra 100mg 3 times to no avail yet which is frustrating. I am told it could take a year.
The good news is I just had my second post op PSA which came back at <0.1ng/ml which is excellent.


If I had the chance again I would do LRRP but maybe be sure it is done with the robot. I have a feeling the vision is better and thus encourage earlier return to continence and potency.

UPDATED
July 2005

 

I am now 10 months out from surgery. I have had three PSA readings of <0.10 ng/ml which is excellent. It took me 10 months to dry up but I am very active. I have not had an erection yet, however I am very happy that I do not have any signs of recurrent cancer and feel great.

I would still do surgical treatment again for the peace of mind knowing the cancer is out for now. I understand at my age it may take up to 2 years to gain sexual potency, but I am working with different drugs and routines to try and regain it.

For those of you just starting prostate cancer is a beatable disease, just pick what is right for you.

UPDATED
August 2006

 

I am now 23 plus months post laparscopic surgery. At about 23 months Viagra finally worked giving me an erection usable for penetration. It was a long 22 months in which I had tried and used shots (sometimes sucessfully) and a cheap machine unsuccesfully. The point is gentleman, patience is the best healer. Our doctors universally underestimate how long it takes to recover potency following these procedures. I am a professional in another type of surgery and I have followed over 15 men I have advised who had everything from RP to Robotic and most of them had a long battle to regain potency even with devices and drugs. However don't give up because eventually you will regain most of your urinary control and your potency. I will not wait and see if in a few months I can get rid of Viara too.

I am always available for advice and consult.

 

UPDATED
August 2006

 

The last year (3 years Aug 24) has been following the PSA which has remained at <0.1 thankfully.

I have had various results with combatting ED problems. At times the drugs Viagra and Levitra have worked, but not conistently. I am contemplating going back to trying the injections which I had used before.

Other than that I feel healthy and still working. I would be happy to help others through the treatment and followup process.

 

UPDATED
January 2008

 

To start the New Year I will report that after 3.5 years I have predictably gained my potency back with Levitra. I would like to encourage all of you who are fighting this problem to remember that if you were 60 plus when you had the surgery erections just don't pop back up. It takes time and patience from you and your partner. I think 2 years and over is not abnormal for recovery. In the meantime you can try shots and vacuum devices to fill in the void.

Don't get discouraged and remember we are all and have gone through the same problems.

Good luck to all.

 

UPDATED
March 2009

 

Everything is ok. I did go from less than <0.1 PSA to 0.20 but my original surgeon and a local urologist said not to sweat it for now.

Also at 4.5 years Levitra has now predictably kicked in when I use it. Problem at age almost 68, I forgot what I was trying to use it for.

I still leak when tired when active which I still do a lot of dental surgery and work out. The bladder problems maybe more underestimated before we have this surgery than we ever knew.


Bill's e-mail address is: braneburt@comcast.net

 

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