YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

 

BRONZE

Cary Babinec and Donna live in United States. He was 57 when he was diagnosed in April, 2007. His initial PSA was 3.3 ng/ml, his Gleason Score was 6 and he was most likely staged T1c. His choice of treatment was Laparoscopic Surgery: Radiation: Hormone. Here is his story.

The first Doctor who diagnosed me was arrogant and since I was near a major Cancer center in St Louis, MO (Barnes-Jewish Hospital - Siteman Cancer Center) I opted for surgery with a good sparing of the nerves doctor. He went in with the 5 Laparoscopic system. Said he disliked the Da Vinci device. I came out of surgery with my prostate still in. He said their was too much tissue connections and it would have left me impotent and incontinent.

I am now undergoing radiation treatments on a Varian Clinac photon machine. 42 treatments everyday for 8 weeks. I have been on Casodex and the shot in your stomach that goes with it.

Other than hot flashes and some fatigue I have been pretty good. My Cancer center re-evaluated my Gleason Score to a 7 from 6. My scans showed no cancer in my bones.

I changed my diet and stopped all red meat and went on a high vitamin C and D diet. Also I am taking a product called JUICE PLUS which claims to have the value of 16 fruits and vegetables. I drink a lot of pure juices like pomegranate and grape.

The need for your good cells to recover is high so anything that will help my immune system is worth it for me.

My radiation treatments are about 25-30 minutes long and I can see the targets on a screen as the machine is hitting them with the beam. The targets beside my prostate are the lymph nodes and first centimetre of the seminal vesicle. When I am on the table of the machine I pray.

I wanted a proton machine but there isn't one near me. Proton machines cost over $125 million and my hospital is supposed to be getting a less expensive one soon.

My doctor is Jeff Michalski and has me on a 2 year hormone plan. He does lots of research and teaches at Washington Univ.

I am not the easiest patient to deal with because I ask LOTS of questions. I want to know everything about this disease and every possible treatment. I challenge the why and benefits to everything the doctors do. I'm on the net constantly looking for information.

My advice to anyone who reads this is get the best possible Doctor you can find. Also know what your total program involves and what the success rate is. Ask questions! Don't be worried about looking foolish if you don't know something.

Also get on the net and find out as much as you can about what works and why.

Don't be surprised if some friends disappear. They don't know what to say and they will avoid you.

I hope I can help guide and inform with this information.

God Bless!

 

UPDATED

April 2008

 

My radiation treatment was over February 16th 08. During that time they rushed me in for a new CT scan. It seems my Gold Markers had moved and my Dr.Jeff Michalski seemed worried. My radiation had not stopped the cancer from growing. They opened up the targets for the radiation to be much broader with the seminal vesicles and bladder increased. I had a new meeting during radiation treatment that basically said "We suspect we haven't stopped the Cancer from Growing". As you can guess I was upset. I finished my treatments and prepared for the worst.

I am now showing symptoms of the Cancer spreading. Bad muscle, bone aches and fatigue. I have trouble with my balance.

I am taking high doses of Vitamin D and C. I drink lots of pomegranete juice and Flax Seed. I eat very little RED MEAT. Im getting lots of exercise and sleep.

Major Horror! I was due for a hormone shot in January and some how it got missed by the hospital. When I called my nurse she checked my charts and said "Oh S__T". I was in that day for the shot. How much damage that missed shot caused I dont know yet.

Testosterone feeds the cancer and those shots stop your testosterone. So it may have fed my Cancer by that missed shot.

So much for a seventh in the nation Cancer hospital! From all I have read on line I am in deep trouble. My symptoms have raised the alarm that I may have less than a year. I am waiting for my PSA results to be done in first week in April.

Cary's e-mail address is: bjmbjm1998@earthlink.net


 

 

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