Colin
C Lives in United Kingdom. He was 66 when he was diagnosed on September 18, 2006.
His initial PSA was 3,568.0 ng/ml, he did not have a biopsy so does not have a
Gleason Score. He was staged T4. His choice of treatment was ADT (Androgen Deprivation
Therapy). Here is his story.
Through out 2005/06 I went to see my GP on
several occasions complaining of severe pains in my abdomen.
On each occasion
he sounded my chest and back and stated he couldn't find anything wrong.
On
Thursday 14th Sept 06 in desperation I rang NHS Direct and things started to happen,
I was taken to hospital and had several tests including an MRI Scan and DRE (Digital
Rectal Examination). By the weekend I was told I had Active Prostate Cancer with
Metastasis, and was put on hormone therapy, 10mg Morphine MST and Iron tablets
(HB was down to 7).
I was discharged on the 26th Sept 06 and given a 3
month out patient appointment. PSA was down to 20 and DRE found my gland was smooth
and round and as remained so to this day. throughout 2007 my PSA dropped to 3
but has risen again at my Jan 08 appointment to 29. They are going to prescribe
a tablet to work in conjunction with my Zoladex injection.
I couldn't help
thinking I had been let down by my GP. I felt alarm bells were ringing and that
he should have given me a PSA test much earlier.
I decided to complain
and had a meeting with the Practice Manager who gave me a copy of my medical records
and told me there was no record of me attending the surgery complaining of pains
and that the Emis software would not allow records to be deleted. In other words
it was all in my imagination. I suppose we were each calling the other a liar.
I
didn't pursue things any further because I was going into hospital for a hip operation
on Oct 1st 07 which by the way I was told they would never do once I'd been diagnosed
with PC with mets but that's another story.
Colin's e-mail address is:
colin309@btinternet.com
|