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PROSTATE CANCER SUPPORT SITE

 

 

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Evan Gray and Lorraine live in Bay of Plenty New Zealand. Evan was 67 when he was diagnosed in Oct 2001. His initial PSA was 4.4 ng/ml and his Gleason Score was 3+3=6. He was staged as T2b and his intial choice of treatment was surgery. Here is his story:

A lump was found on my prostate after DRE. My PSA was4.4 ng/ml and my biopsy positive -3+3 Gleeson. I was staged as T2b.

After prostatectomy it was found that the cancer had escaped the capsule and invaded seminal vesicles. It was ductal type.

After 3 months my PSA was 0.4 ng/ml but after 6 months it had risen to 2.9 ng/ml. I had a bone scan, Cat scan and MRI scan and these indicated that the cancer had metastasized to spine.

I commenced hormone therapy and had severe side effects but my PSA dropped to 0.0 within 9 months. My PSA remained undetectables for 9 months, when I opted to stop all hormone.

For the next 12 months PSA remained undetectable and the side effects disappeared. Twelve months later it had jumped to 2.20 ng/ml. I recommenced hormone therapy and am currently waiting on latest PSA tests. Once PSA has restabilised I intend to stop treatment again.


I will advise further results of this intermittment hormone therapy.

UPDATED
April 2006

 

After 15 months of stopping hormone therapy PSA had risen to 2.9 ng/ml. At this stage I elected to resume Lucrin treatments. After a further 9 Months the PSA had dropped again to 0.1 and I elected to stop Hormone treatment again.

After a further 6 months it is still 0.1 and I will continue monitoring it every 3 months. After trying all the treatments without success to regain potency after my radical prostatectomy I finally opted for a penile prosthesis implant. This was a disaster with unprecedented tissue swelling around all parts of the prosthesis. My urologist has been unable to find a similar case anywhere. After 12 weeks it is slowly getting better with less swelling and fewer autoinflations.

I would be pleased to hear from anyone else with this problem.

UPDATED
July 2007

 

Still continuing with intermittent Hormone therapy. PSA falls to 0.0 in 9 to 12 months at which time I cease all hormone. After a further 9 to 12 months PSA starts to rise to approximately 3 to 4 at which time I recommence hormone. This gives approximately 50% increase in quality of life with reduction in side effects. I have now completed three cycles and will be continuing the process.

 

Evan's e-mail address is: evan.gray@xtra.co.nz

 

 

 

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