YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

 

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John Sutherland and Sarah live in London, UK. He was 70 when he was diagnosed on February 2, 2009. His initial PSA was 8.9 ng/ml, his Gleason Score was 7 and although he says he was staged T2b, this seems to be the pathological staging. It seems from his narrative that he would have been clinically staged as T1c. His choice of treatment was robotic assisted surgery. Here is his story.


Annual check-up revealed a marginally higher PSA than the cut off for my age group (70+), at 7.3. Elected to use the UK private healthcare system (despite lifelong principles) so

(1) I could have the surgeon of my choice (Prof Roger Kirby)

(2) because so under pressure is the National Health System at the moment that cancer detection in the aged (i.e. "those about to die") ranks somewhere below ingrowing toenails.

First biopsy (Feb. 2009---like being shot in the anus with a beebee gun, TWELVE TIMES) came up with one core, 10%, Gleason Score 3+4=7. No pressure. Wait three months, says Kirby, then come back. April, second biopsy, tiny spread next door core, Gleason Score 6.

Spoke to clever physician friend who said do it, unless you really don't want to.

Decided on operation, Kirby + his buddy D Vinci, two hours, only severe pain in the wallet (no "small incisions" there). Lab reports back week later (today). margins clear, volume tiny (0.05), Gleason Score downgraded to 6. I was less diseased than I thought.

What was surprising was that the damn gland had ballooned to 100gms, despite a Greenlight laser TURP (done by Kirby) four years ago. Another four years and it would have been the size of the Goodyear blimp. And, of course, I would have needed another TURP (of the salami-cut kind).

Catheter removed today and I'm leaking like a rusty bucket. but it's easier to live with something that will get better than something which may get (horribly) worse.

My advice to anyone else? Don't let anyone else advise you into something you're not positive about. it's not their prostate.

For me, it was Pascal's wager (believe in God. If He doesn't exist, you've lost nothing. If He does, you're a winner). the operation, of whatever kind, doesn't, one is told, cause or spread cancer. And it does lessen the chance, for most of us, of dying (prematurely) of it.

Thank you for this excellent website and the fellowship it offers.

John Sutherland

John's e-mail address is: uclejas@aol.com

 

 

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