YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

BRONZE

Pat Inglese and Dorothy live in Georgia USA. He was 65 when he was diagnosed on January 15, 2009. His initial PSA was 4.9 ng/ml, his Gleason Score was 7 and although he does not know his staging it seems likely he was staged T1c. He is undecided as to his choice of treatment. Here is his story.

I was diagnosed with Prostate Cancer January of 2009. I initially decided to go the HIFU route but changed my mind because I had read some articles on the Internet regarding rectal issues. I have had rectal problems for the past 10 years and worried that HIFU could possibly make it worse.

I have consulted with two Urologist and wasn't satisfied with their recommendations. I now have an appointment with an Oncologist to get an unbiased opinion. I'm in good health and want to make sure I make the right decision, but hope that I haven't taken too much time to decide.

 

UPDATED

August 2009

 

 

It has been seven months since I was diagnosed with Prostate Cancer.

I have been to seven different doctors and as we all know was advised to take each one of each doctor's special treatment.

I started out thinking about HIFU and went a complete 380 degrees back to HIFU. I know it is not FDA approved but with seven months of study under my belt I think it is the way to go. Since radiation keeps on giving and surgery according what I have read is a lot more risky because of infection and it seems that incontinence and impotence are a higher factor then with HIFU.

The only question I have regarding HIFU is how does the uretha regenerate it's self..after basically being destroyed by the heat from the ultrasound?

I will probably schedule my HIFU for sometime in September. Since I am a Gleason 7 I don't think I should wait to much longer.

 

UPDATED

November 2009

 

 

After nine months of watchful waiting and studying the various procedures. I decide to go with what I considered the best procedure for me. I went to Nassau on October 30, 2009 and had the HIFU procedure done by Dr. Scionti. It pretty much went flawless no real pain just a suprapubic catheter which is somewhat annoying but worth the results. It has been one week since the procedure and I am doing just fine. Dr. Scionti was great through the whole process. He was always available either by cell or e-mail which made me feel good about being in Atlanta with my Doctor in New York.

I will continue to update as the months go on. I will now anxiously wait (3) months to see the results of my first PSA.

 

UPDATED

February 2010

 

 

I had my HIFU procedure on October 31, 2009 in Nassau the Bahamas. I had my first PSA on January 26, 2010 and the really good news is - it was undetectable! Needless to say I'm very happy that I decided to go with HIFU. I am pretty much back to normal and can't believe looking back why HIFU hasn't been FDA approved. Maybe I'm being too optimistic after only 3 ½ months, but I sure am excited with the results so far.

Pat's e-mail address is: inglesep@bellsouth.net