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This is his Country or State Flag

Marvin S lives in Kansas, USA. He was 64 when he was diagnosed in June, 2015. His initial PSA was 35.20 ng/ml, his Gleason Score was 7a, and he was staged T3b. His choice of treatment was External Beam Radiation+ADT (Intensity Modulated with ADT). Here is his story.

2015
May 26 Visited Dr K. due to urgency of urination.
June 11 PSA test following a DRE at Dr K.'s office PSA=35.2
June 12 Discussed results with Dr. K,- Referred to Dr Z.-Biopsy
June 22 12-needle biopsy Gleason score of 3+4=7. Dr. Z recommended prostatectomy due to high PSA and size/involvement of tumor. Rated at T3
June 30 Whole body bone scan- no unusual uptakes
July 2 Lower Abdomen CT scan-
July 14 Phone Visit with Dr. C. (Topeka) Rec RT
July 15 Personal visit with Dr. R. Decided on RT
July 29 45 ml Lupron Injection
Aug 25 2nd PSA test = 9.0
Aug 27 Fiducial Placement (3 markers inserted)
Sept 3 RT simulation
Sept 9 Began 1 of 42 treatments.
Nov 5 Completed 42 Radiation treatments- no side effects.
Nov 10 3rd PSA test= 0.3

2016
Jan 18th PSA test= .1
Jan 29th 2nd scheduled Lupron injection- refused due to side effects. (letter to Dr. Rine)
Mar 9th Dr. Barbara L., pretty much said continue on Lupron or metastasization into bones. Lupron injection scheduled.
Mar 21st Went in to SBA hospital for PSA Check.
Went to Wichita Urology Dr. Z for Lupron injection. 45ml (6 mo)
Also received 16ml Prolia injection to minimize bone loss.
PSA test = .4… I was 2 months beyond the Recommended interval
May 1st Slight burning during bowel movment. Some weight gain (5 pounds) Possible 1" height loss ??? Definite Gynecomastia.
Some urinary restriction- resumed Flowmax (.4mg). (resolved)
Elevated BP. Continued hot flashes. (Black cohosh 40mg)
Joint pain (Ibuprofen 200mg 4 times daily). Occasional slight dizziness with blurry vision. Marked short-term memory loss.
If next PSA is elevated, is Provenge indicated? Intermittent therapy w/Lupron? Any recommended clinical trials?
May 18th Appointment with Dr. Barbara L. for above.

Next scheduled appointment in October 2016 for an additional Lupron shot.
June 14- Contacted Dr K.'s office and requested a PSA test.
June 16- PSA test= undetectable
Aug 11 Complete Physical PSA > .01

UPDATED

November 2017

Nov 29 complained to Dr. L of urinary/bowel problems-Diag UTI
Rx for Flowmax (.4mgx2) and Ciprofloxacn (500 mgx2). Resolved.
Re-Scheduled Lupron + Prolia for 12/10/16 at 11:10- Specialty Clinic
12/5/16 Blood drawn for PSA and Testosterone in ant of Dr. Luder rec Lupron
12/9/16 PSA 0.2 Testosterone 291 for Dr. Z on Fri 12/10/16
Dr. McK- proctoscope for polyps, two removed. (Benign)
12/10/16 45 ml (6 month) Lupron +16ml Prolia injections.

2017
1-15-17 through 2-1-17 Urinary restriction- Dr. Ku. Rec by Dr. Z
2-7-17 Appointment with Dr. Z for urinary restriction/burning,etc
Prescription for Myrbetriq (mirabegron-50mg 1X day); Tamsulosin .4mg 2x; Ibuprofin 200 mg X 6 daily. Small spot on Bladder. Next Appt. June 23
2-23-17 Annual Appt with Dr. C–Blood sugar OK
3-7-17 Follow up " " "
3-15-17 Began Atkins diet (low carb- high fat) began at 186 lbs.
Also 2 Aspirin daily+ 16 Oz Cran-Pommegranate juice. Began taking 2 capsules of Pomi-T daily + .15ml CBD oil sublingually. Cont'd urinary restriction.
5-25-17 Wt now 182. Continuing with 3-20-17 (above) program.
6-2-17 PSA undetectable. Dr, Z (urologist) suspended any additional Lupron injections unless PSA rebounded upward.
6-23-17 PSA checked again with annual physical. <.1 . Dietary changes include no milk, no red meat, no sugar. Increase of veggies and fruit plus
pomegranate juice. Weight down to 167.
9-19-17 Blood test prior to unrelated suergery on shoulder. PSA =.2
11-1-17- No recent urinary restriction. Back to daily 5K walk. Weight holding at 162.

UPDATED

November 2017

It has been while since I updated. I have been self-administering 3 drops of CBD oil every other day or so. Diet is low on sugar, no red meat, (emphasis on fish and chicken for protein) and low carb. Moderately active with daily walks. Urinary restriction seems to have self-corrected. I have even experienced erections of late!!

Marvin's e-mail address is: marvinsteele AT netscape.com (replace "AT" with "@")


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