Tom F and Leanna live in Connecticut, USA. He was 56 when he was diagnosed in November, 2016. His initial PSA was 38.00 ng/ml, his Gleason Score was 8, and he was staged T4. His choice of treatment was Other (Other). Here is his story.
In September of 2016, went to Naturopath and had first PSA ever, drawn as part of routine check up - returned at 27 ng/ml. Neither naturopath nor I understood full ramifications of that number and I delayed in getting repeat draw. Following research and understanding possible seriousness, second draw 6 weeks later. PSA up to 38. All has moved pretty quickly since that time. Biopsy, 6 of 12 cores positive, Gleason 8. MRI and bone scan - probable involvement of left seminal vesicles; no apparent lymph node or bone. My partner researched and we had hoped to go to Snuffy Myers, but he was no longer accepting new patients. Referred us to Mary Ellen Taplin out of Dana Farber. Went to clinic where 3 provider types and options were offered including Clinical trial involving ADT followed by prostatectomy. Chose the clinical trial Just finishing 6 mos of Lupron and abiraderone. Preparing for surgery on July 6th. Able to work; hot flashes, fatigue; no libido. Pretty anxious still about prognosis. And physical changes I am facing. Not much attendance to the psychological aspects for patient and partner, but physical care very good at DF.
Tom's e-mail address is: tlcrew AT cox.net (replace "AT" with "@")