Although
there is good information on many Internet sites, you may find them confusing
and you might prefer to "talk" to people dealing with the same issues.
There are many places on the Internet where you can do this apart from the Forum
on this site. A selection of those focussing on
prostate cancer which can provide both information and support are shown below.
One of particular interest to the wives and female partners of diagnosed men is
A Prostate Cancer Forum
for Ladies Only a group dedicated to educating women about Prostate Cancer;
its treatments and side effects.
If
you have not used a Mailing List previously, you might find it helpful to read
the FAQ - Frequently asked
Questions.
YANA
Forum -
available for the discussion of anything to do with Prostate Cancer. There are
only two rules: no commercials and no flaming - be polite at all times.
Prostate
Problems Mailing List (PPML) This is an unmoderated forum which discusses
problems and treatments related to men's prostate gland. Discussion includes symptoms,
diagnosis, treatment alternatives, complications and personal impact. The intent
is to help patients and their loved ones understand their illness and make informed
treatment decisions; to encourage self-study of the effects and treatment of prostate
diseases; and to support research into the cause and cure of prostate problems
as well as encourage effective health care. With well over 1,000 members there
can be a relativelt high volume of posts which cover a wide variety of subjects.You
can join by clicking the link above or by sending an e-mail to LISTSERV@LISTSERV.ACOR.ORG The Subject
must be left blank or have a dash and the only thing in the body of the mail must
be SUB PROSTATE Firstname Lastname (substitute your real name for Firstname Lastname).
If you have any problem subscribing you can mail here
PPML archives are a
very useful resource where you can review discussions that have taken place on
the List
Prostate Cancer
Support - This List does not have as high a volume as the PPML List but with
800 plus members a wide variety of subjects are discussed. It has a number of
British members, so that some of the focus is on issues related to PCa in Britain.
The
Prostate Cancer Charity Message Board - British based
and therefore of particular interest for people in Britain, this Forum nevertheless
has international members and cover a broad range of prostate cancer specific
discussion groups.
WebMD (Prostate Cancer section) message board - most of the founding members
of Yana met on this forum. You can join it by simply registering.
A Prostate Cancer Forum
for Ladies Only is of particular interest to the wives and female partners
of diagnosed men. It is a group dedicated to educating women about Prostate Cancer;
its treatments and side effects.
Protons for Prostate
Cancer - This group exists to provide information regarding proton beam therapy
for prostate cancer, and to help anyone learn more about the treatment and the
disease. Members are encouraged to post their problems and disease characteristics,
and freely ask any questions. Spam is prohibited; please post only questions and
comments related to proton therapy and/or prostate cancer.
Advanced
Prostate Cancer: Treatment Information and Support for Men With Prostate Cancer
that did not respond adequately to primary treatment. Rising Post Treatment PSA's.
Also for your Family, Friends and Caregivers. Sponsored and produced by the national
nonprofit prostate cancer organization, Malecare.
You can join by going to the website or e-mailing advancedprostatecancer-subscribe@yahoogroups.com
.
Newly Diagnosed
- NewDx offers information and support to those newly diagnosed with prostate
cancer. Experienced PCa patients who want to help the newly diagnosed are encouraged
to join!
Prostate
Cancer Under 50 - With men being diagnosed at an earlier age, this site focusses
on the issues of younger men.
Surgery - RP -
A mailing list dedicated to the needs and concerns of radical prostatectomy patients.
The sole purpose of this list is to narrowly focus on the concerns of those who
have already had an RP or have selected RP as their treatment.
Radiation - EBRT
offers discussion and support for patients interested in any form of radiation
therapy for prostate cancer.
SeedPods-
A mailing list for those interested in brachytherapy (radioactive seed implants)
as a treatment for prostate cancer.
IceBalls-
A mailing list offering information and support to those interested in cryosurgery
for prostate cancer.
Hormone - CHB
offers discussion and support for patients interested in any form of hormonal
blockade. This includes: orchidectomy, medical hormonal blockade [lupron, flutamide,
proscar, etc.].
Watchful Waiting-
WW offers discussion and support for patients interested in Watchful Waiting as
a strategy for the management of prostate cancer.
HIFU - This is a newly established Board
for men interested in HIFU (High Intensity Focused Ultrasound) as a treatment
option
Physician To Patient p2p- The purpose of the p2p mailing list
is to provide the prostate cancer patient or other interested parties with information
from physicians about the treatment of prostate cancer. This is a moderated list
without the high volume normally associated with mailing lists or the frequent
off-topic questions.
To
subscribe, send an email to: majordomo@prostatepointers.org
The Subject must be left blank or have a dash and the only thing in the body of
the mail must be subscribe p2p end
Within a few minutes, you should
receive a confirmation message from majordomo. Please follow the instructions
exactly in order to activate your subscription.
IMPORTANT: Once you have completed the formalities,
you will receive your copy of th e posts but if you wish to post, please note
that every message sent to p2p must contain
a Prostate Cancer Digest. Instructions for preparing your Digest in pdf format (you will need
Acrobat Reader to access this) are in the first issue of PCRI Insights
if you do not wish to access the pdf version you can get the same instructions
on the Webpage.
PROSTATE POINTERS BBS- This
is a fairly complex Message Board covering all aspects of prosate cancer and treatment
options. It can look a little intimidating to newcomers, but the small amount
of effort required to get onto the board makes it well worthwhile.
Prostate Cancer and
Intimacy- PCAI is a mailing list for frank and open discussion of the sexual
issues surrounding PCa.
Prostate
Cancer and Gay Men Is a mixture of gay, straight and bi-sexual men, although
the majority are gay. One of the main comments from the straight men in the group
when asked why they chose to join a gay group is that it is a younger crowd which
discusses treatment and sexuality after treatment more frankly and openly than
most straight prostate cancer groups.
The Circle-
Support for wives, families, friends, and significant others of men with prostate
cancer-and, of course, the men themselves.
Spirit- Spirit
is a mailing list for those who want to share spiritual support as they live with
prostate cancer.
Promise- A
mailing list for those grieving a loss. Also offers help and support to those
with a spouse, partner, or family member in the last stages of life. To subscribe,
go to: http://www.prostatepointers.org/mailman/listinfo/promise
Prostate Cancer Action
Network - A forum for discussing important issues affecting the care and treatment
of prostate cancer survivors, and ways to bring about needed change.
Humor And Healing
- HAH is a humor list for the online PCa community, more intimate and friendly
than the big Internet joke lists.
